Teen with 90-degree angle neck undergoes successful surgery

Teenager, 13, who suffered from a mysterious muscular condition that left her head STUCK at a 90-degree angle undergoes ‘successful’ life-changing surgery to straighten her neck

  • Afsheen Kumbar thought to have a muscular disorder that causes twisted neck
  • 13-year-old girl, from Pakistan, risked lifechanging surgery to straighten neck 
  • She suffered from rare condition which made neck bend at 90-degree angle
  • The teen struggled to eat, walk, use the toilet, and was unable to go to school 
  • A 13-year-old girl who suffered from a mysterious muscular condition that left her head bent at a 90-degree angle has undergone life-changing surgery to straighten her neck.

    Afsheen Kumbar is thought to suffer from a disorder that has caused her to develop a severely twisted neck, known medically as torticollis. 

    The problem first appeared when she was just eight-months-old after she injured her neck whilst playing outside. 

    Unable to keep her head upright, Afsheen lives in constant pain, which leaves her struggling to eat, use the toilet and even walk.

    Afsheen’s condition also stops her from going to to school, with her spending her days at home in Mithi in Sindh, Pakistan, with her mother Jameelan, 54, and eldest brother Mohammad Yaqoob Kumbar, 29.

    However, last week Afsheen underwent lifechanging surgery at Agha Khan University Hospital in Karachi, Sindh that was a huge success and she is now recovering in intensive care.








    Afsheen Kumbar, 13, pictured, who suffered from a mysterious condition that left her head bent at a 90-degree angle has undergone life-changing surgery

    Afsheen Kumbar, 13, pictured, who suffered from a mysterious condition that left her head bent at a 90-degree angle has undergone life-changing surgery

    The teenager (pictured) is thought to suffer from a muscular disorder that has caused her to develop a severely twisted neck, known medically as torticollis. The problem first appeared when she was just eight-months-old after she injured her neck whilst playing outside

    The teenager (pictured) is thought to suffer from a muscular disorder that has caused her to develop a severely twisted neck, known medically as torticollis. The problem first appeared when she was just eight-months-old after she injured her neck whilst playing outside

    Afsheen Kumbar

    Afsheen Kumbar

    Afsheen (pictured) underwent lifechanging surgery at Agha Khan University Hospital in Karachi, Sindh that was a huge success and she is now recovering in intensive care

    Afsheen, who is one of six, was born healthy but things took a dramatic turn when she was just eight-months-old and fell whilst playing outside. 

    Torticollis can be caused by injuries to the spine or neck muscles. This makes the neck muscles spasm, which can lead to twisting of the head.  

    Afsheen’s parents initially thought nothing of her bent neck, until it gradually got worse.

    Due to their limited funds, they eventually took her to a local faith healer, but it did nothing to help. 

    Afsheen’s story gained worldwide attention two years ago and a GoFundMe page was set up top help her family afford surgery.  

    The youngster was taken to Agha Khan University Hospital in February 2018, where specialists said they would operate on her – but gave her a ’50 per cent chance of survival’.

    ‘They told us there is 50 per cent chance for the successful surgery and asked us to go home and think over it,’ Afsheen’s eldest brother Mohmad Yaqoob said.

    Afsheen, who is one of six, was born healthy but things took a dramatic turn when she was just eight-months-old and fell whilst playing outside

    Afsheen, who is one of six, was born healthy but things took a dramatic turn when she was just eight-months-old and fell whilst playing outside 

    Afsheen with her eldest brother Mohmad Yaqoob (right) who has helped look after her over the years

    Afsheen with her eldest brother Mohmad Yaqoob (right) who has helped look after her over the years 

    He previously added: ‘My mother earns £60 from working at other’s homes. This is how we are making our ends meet. We have no money to pay for her hospital fees.

    ‘We cannot even take her to hospital because she cannot commute by public transport. And a private taxi costs £70 [for] each journey.’

    Mr Yakoob and his family now rely on the donations from the GoFundMe for Afsheen, which has raised over £30,000 from people across the world.  

    Afsheen will need more surgery throughout her life to keep straightening her neck, and her mother has asked the public to ‘help their cause’ and keep donating to save their daughter.